The Adventure Log will track my journey and include all the updates on my experiences and meaningful events
When Rob started this blog he made it abundantly clear that he would solely be responsible for all content; while he gave me editing rights, I was certainly not to use them. However, everything happened so fast – too fast – so I’ve been left with no other option than to break the rules and … Read more
I was all set to post a nice little positive update in the middle of last week but for the second time in the last month I had too much fun planning out a beautiful fall weekend filled with friends, kids games, and maybe even a little golf (watching) and life reminded me – again … Read more
I’m a sucker for a gimmick column—Dave Letterman’s Top 10 lists, Power Rankings, Jimmy Kimmel’s Mean Tweets, etc. One of my favorite sportswriters, Zach Lowe, does a weekly ’10 Things I Like and Don’t Like,’ which perfectly encapsulates the gimmick column. Enough structure to keep the column organized and moving, but enough freedom hit what … Read more
Thursday, October 15th started out as my best day in quite a while. The blood clots that have slowed my recovery are receding through the recommended treatment of elevation, heat, and activity. Just lots of short walks around the house and my driveway and cul-de-sac. I spent a lot of the morning getting organized to … Read more
The Great Weight has a ‘name’ and a ‘grade.’ This is good. Or would be, if it wasn’t the one that we had been hoping to avoid. My tumor is officially a Grade 4 Glioma, called a glioblastoma, which is the most aggressive brain cancer out there. With the feedback that Dr. Weingart provided throughout … Read more
I am a huge fan of a piece of advice pulled from semi-popular 80s one-hit-wonder Baz Luhrmann. I quote it often and my inlaws and wife – descendants from a long line of born preparers and worriers – have always thought I was crazy. Don’t worry about the future. Or worry, but know that worrying … Read more
The first thing Dr. Weingart said when he saw my MRI was ‘that thing needs to come out.’ There is no biopsy or pre-work. You just get the surgery as soon as you can, and they send a piece of the tumor to the lab for diagnosis. In the ~70% of cases where the tumor … Read more
Wow, really? You just want to jump to… OK. Let’s do this. Who, What, Where, When, Why. Who – Rob Rex, that’s who I am a 41-year-old marketing professional and entrepreneur that up until ~2 weeks before the launch of this blog was enjoying a nice quiet life in suburban Severna Park Maryland with my … Read more
In this post I’ll provide an update on what I am going through physically from surgery through the first 10 days of recovery. There is a lot going on so I’ll add sister post shortly that covers more of what life is like in the facility
1) Surgery – The Good Part I really cannot say enough positive things about Johns Hopkins, and Dr. Weingart. My prep and surgery were handled in the Zayed Pavilion at Johns Hopkins and incredibly well run, spare no expense, highly staffed neurosurgery experience where I really don’t think I encountered anyone who had been doing … Read more